No. 166 PRIVACY PRESERVING GOVERNANCE OF E- HEALTH

IGF 2014 sub theme that this workshop fall under

Internet and Human Rights

Description

Health data is considered to be sensitive in EU data protection legislation and others that follow the EU tradition. Health data protection is a crucial aspect of privacy which also has implications for public health. On the other hand, transformation from health-care systems to e-Health systems and electronic medical records getting more widely used, data protection has become challenging. This is true especially in Turkey, where there is a huge effort in e-Health transformation, and centralized medical record databases. Unfortunately, data protection in health is not getting considerable attention in Turkey. The aim of this round-table is to bring the privacy aspects of e-Health transformation in the spotlight and discuss how privacy preserving governance could be enabled for e-health in the age of the Internet. We plan to invite experts from academia, NGOs, government, and industry to the roundtable to discuss the current problems and possible solution for governance of e-Health systems to preserve privacy.

We are an interdisciplinary team of researchers from computer science and law. We are also the founders of Istanbul Privacy Platform (ipp.modap.org). IPP has previously organized events such as Technology, Law, and Privacy Conference (tlpc2013.modap.org). TLPC 2014 will be organized in Istanbul on 9-10 June (tlpc.modap.org). Second day of the conference will be dedicated to health data protection and we plan to invite some of the speakers of TLPC 2014 to this roundtable to extend the discussions to the IGF roundtable.

Name(s) and stakeholder and organizational affiliation(s) of institutional co-organizer(s)

Elif Kuzeci, Bahcesehir University, Faculty of Law
Nilgun Basalp, Istanbul Bilgi University, Faculty of Law
Yucel Saygin, Sabanci University

Has the proposer, or any of the co-organizers, organized an IGF workshop before?

no

Type of session

Roundtable

Duration of proposed session

90 minutes

Subject matter #tags that describe the workshop

#privacy, #e-health

Names and affiliations (stakeholder group, organization) of speakers the proposer is planning to invite

Elif Kuzeci, Bahcesehir University, Faculty of Law
Nilgun Basalp, Istanbul Bilgi University, Faculty of Law
Yucel Saygin, Sabanci University
Representative from Turkish Medical Association
Representative from Turkish Ministry of Health
Representative from Turkish Ministry of Justice
Representative from Information Commissioners Office, UK

We are open to other speakers that may be suggested by IGF.

Name of Moderator(s)

Yucel Saygin

Name of Remote Moderator(s)

None

Description of how the proposer plan to facilitate discussion amongst speakers, audience members and remote participants

Nilgun Basalp and Elif Kuzeci will set the stage for the roundtable and then we plan to have 15 minutes for each speaker. Remaining time will be dedicated for the questions from the audience.

Description of the proposer's plans for remote participation

We do not plan remote participation.

Background paper

No background paper provided

Brief substantive summary of the workshop and presentation of the main issues that were raised during the discussions

No information provided

Conclusions drawn from the workshop and possible follow up actions

No information provided

Estimation of the overall number of participants present at the workshop

0

Estimation of the overall number of women present at the workshop

No information provided

Extent to that the workshop discuss gender equality and/or women’s empowerment

No information provided

A brief summary of the discussions in case that the workshop addressed issues related to gender equality and/or women’s empowerment

No information provided

Reported by

No information provided

Workshop transcript

No transcript provided

Youtube video

No video provided

Attachments

No attachments provided