IGF 2020 Public Collaboration On Multi-Stakeholder Health Data Values

Information

Session

Time:

Wednesday, 4 November, 2020 - 16:00 to 17:30 UTC

Room:

Room 1

About this Session:

The session will include presentations on Block-Chain and Machine Learning for the Health Care sector; insights in to eHealth, and an open discussion on eHealth matters for the future.

DC:

Data Driven Health Technologies

Round Table - U-shape - 90 Min

Theme:

Trust

Subtheme:

Artificial Intelligence
E-Health
Education

Description:

An open collaboration, of multi-stakeholders with backgrounds in medicine; research; data science; computer systems, application development; public policy and economics; privacy; law; accounting; insurance; mathematics, the public and so forth, so as to enable the development of a common set of principles, values and definitions for eHealth Systems development by design. The application development environment and the source data sets get more complex daily, and effective systems design is key to excellence in outcomes. A common language, with a focus on establishing critical attributes of data inputs and outputs is the focus of this session.

Relevance to IG:

The DC is developing a document on shared values, principles and definitions for approaching multi-stakeholder effective development for ehealth care systems through the vision of establishing excellence in data quality. Data drives the systems old and emerging (AI. block chain etc.). This document is to be used as an introduction by stake-holders gathering to develop health data systems by design, which attempts to mitigate the unpredictable risk of sub-optimal outcomes when developing technology solutions . These stake-holders are Doctors, Nurses, Patients, Hospital Administration, Computer Scientists, Data Scientists, Policy Makers, Privacy Professionals, Lawyers, Accountants, Financiers, Stock-holders, the public etc. Education is key to establishing a common language for application development. If the stake-holders speak the same language the data definitions are clearer and the expected outcomes will carry lower risk leading to better decision making on the part of the clinician, hospital administrator and the patient user. This approach will also assist companies developing pharma products and patient support technologies such as artificial limbs and so forth. These products and services are increasing supported by the Internet of Things, Artificial Intelligence, Block Chain and of-course traditional ICTs for systems such as Telemedicine. eHealth as a specific area for technical systems design by multi-stakeholder discussion has not had its place until right now at IGF and with this session for IGF it will have its critical need for, place. This discussion is important not just due to Corvid 19 but for overall health care for the global population.

Relevance to Theme:

By building a common understanding through language and values, multi-stakeholder teams developing and operating health care systems and outcomes will be able to build trust amongst each other so as to enable effective, timely, cost effective outcomes that meet the requirements of healthcare for the providers as well as patients. Government , business and non-profit will see a beneficial return on the human and financial investment.

Organizers:

The members of the Dynamic Coalition: Ms. Amali De Silva - Mitchell; Ms. Janna Belote; Mr. Robert Guerra; Dr Bimalka Seneviratne; Dr Champike Attanayake; Dr Galia Kondova ( University of Applied Sciences & Arts Northwestern Switzerland - presenter on Block Chain); Mr. Jorn Erbguth (Head of Technical Insights Geneva Macro Labs & Academic Researcher - presenter on Machine Learning); Ms.Marina Shentsova

Speakers:

Ms Amali De Silva-Mitchell ; Mr Robert Guerra ; Mr Jorn Erbguth; Dr Galia Kondova; Dr Pramilla Senanayake; Mrs Lakmini Shah; Dr Katerina Sideri; Dr Bimalka Seneviratne; Mr Herman Ramos; Mr Yao Amevi Amessinou Sossou: Dr Champike Attanayake; Mrs Janna Belote; Ms Marina Shentsova;

Onsite Moderator:

Amali De Silva - Mitchell DC Coordinator

Online Moderator:

Open call to online participants

Rapporteur:

DC team will record and report

SDGs:

GOAL 1: No Poverty
GOAL 2: Zero Hunger
GOAL 3: Good Health and Well-Being
GOAL 4: Quality Education
GOAL 5: Gender Equality
GOAL 6: Clean Water and Sanitation
GOAL 7: Affordable and Clean Energy
GOAL 8: Decent Work and Economic Growth
GOAL 9: Industry, Innovation and Infrastructure
GOAL 10: Reduced Inequalities
GOAL 11: Sustainable Cities and Communities
GOAL 12: Responsible Production and Consumption
GOAL 13: Climate Action
GOAL 14: Life Below Water
GOAL 16: Peace, Justice and Strong Institutions
GOAL 17: Partnerships for the Goals

Reference Document: https://www.speedoftrust.com

Report

1. Key Policy Questions and related issues:

Role of new technologies, issues, risks, limitations, safety, education etc. in the Ehealth Space.

Universal health care access assisted by technology to meet UN SDG #3.

Ethics, Standard Setting , Value Propositions for technology use in the Ehealth Space.

2. Summary of Issues Discussed:

Block chain opportunity for the Ehealth care space was presented . A discussion of the data types supported by this technology, as well as the typical types of records conducive to management by block chain were noted . The opportunities for data sharing, and issues for privacy were also noted ,

Mobile Technologies as a tool for bridging the Digital Divide were discussed within the context of ehealth.

How Machine Leaning is conducted was reviewed and the risks for data input, processing and output discussed and illustrated with examples in to eHealth.The quality of the algorithms and risk of data bias was noted with extension to AI. New Technologies such as Quantum Technologies , Holograms and their uptake in the public Ehealth Space were also noted.

The value of stakeholders understanding each other when developing policy, procedures and technology was highlighted within the context of building trust, so as to speed up evidence based effective end results.

The value propositions for multi-stakeholders were illluminated by show casing the ability of these Emerging Technologies to assist with speed to achievemnt of SDG#3 for universal health care services globally ,in innovative new ways, wirh opportunities to transcend issues such as complexities in data sharing, intellectual property, start up costs and so forth, while providing efficient, auditable, effective solutions within the clinical and administrative spheres of ehealth.

Further work in ethics, in all of the existing technologies and emerging technology areas was stressed.

3. Key Takeaways:

Acknowledge that existing and emerging technologies can support reaching UN SDG #3, but good standards, education and knowledge sharing with robust ethical frameworks are key to successful outcomes.

4. Policy Recommendations or Suggestions for the Way Forward:

What policy sector(s) does this fall under? (leave blank if not sure):

Economic

Social-cultural

Technical

Overarching governance issues

Other (put the information in the "Recommendation" box above)

Issue and Recommendation:

Affordable universal access to ehealth for each family unit space with trusted data exchange in times of pandemic crisis is critical and this should be extended to the new normal so as to meet SDG#3 ..Telemedicine is critical support to meet quarantine and isolation requirements for Corvid 19

Who should take it?:

ITU WHO UNDESA. Governments, IGF. WSIS.G20.All stakeholders.

What policy sector(s) does this fall under? (leave blank if not sure):

Economic

Social-cultural

Technical

Overarching governance issues

Other (put the information in the "Recommendation" box above)

Issue and Recommendation:

Ethics in the health care space amongst all stakeholders must be developed further. New Technologies such as block chain, machine learning, AI, quantum technology and holograms add a new dimension to the ethical values currently in place and hence the discussion on ethics must be developed further.

Who should take it?:

All stakeholders and institutions

What policy sector(s) does this fall under? (leave blank if not sure):

Economic

Social-cultural

Technical

Overarching governance issues

Other (put the information in the "Recommendation" box above)

Issue and Recommendation:

Data quality,input and generated is critical for good decion making. Poor data quality and misinformation are an issue and awareness of these issues are important. Outputs of AI / ML could have bias and gross errors. Reasonable human intervention for the evaluation of results should be part of any reporting process to reduce bias and error.

Who should take it?:

All stakeholders plus ITU IGF WHO UNDESA

What policy sector(s) does this fall under? (leave blank if not sure):

Economic

Social-cultural

Technical

Overarching governance issues

Other (put the information in the "Recommendation" box above)

Issue and Recommendation:

Mobile technology sophistication and affordability is an important tool to facilitate the reach to all global cifizens for Ehealth care through telemedicine. This accessibility would meet SDG#3.

Who should take it?:

All stakeholders plus ITU WHO UNDESA

5. Other Initiatives Addressing the Session Issues:

Initiative:

Issue of Universality Access can be addressed by collaboration with IGF Dynamic Coalition Session Community Networks at Times of Crisis and Pandemics

Initiative:

Issue of universal access can be addressed in collaboratiin with Dynamic Coalition on Smart Cities

Initiative:

Work collaboratively with standard setters

6. Final Speakers:

Moderator: Ms. Amali De Silva - Mitchell

Presenter on Block Chain for Ehealth : Dr. Galia Kondova

Presenter on Mobile Ehealth and Digital Divide : Mr. Herman Ramos

Presenter on Machine Learning and AI for Ehealth :Mr. Jorn Erbguth

7. Reflection to Gender Issues:

The panel with moderator of 4 persons was balanced men to women. All topics are gender neutral. Regional represenation and affiliations : Asia , Americas, Africa, Europe . Youth represented on panel.

8. Session Outputs:

3 presentations on independent Ehealth topics : block chain, mobile tech and the digital divide , machine learning and answers provided to questions from audience.

10. Voluntary Commitment:

Activities plan of Dynamic Coalition on Data Driven Health Technologies

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IGF 2020 Public Collaboration On Multi-Stakeholder Health Data Values

Information