Description:
During this session, the speakers will offer their thoughts on possible governance model(s) to encourage data altruism for the common good. Through use-cases and expert opinions, we will investigate the concept of ‘data altruism’, for which purposes data altruism may be useful, who should be ‘donating’ data, the variety of data required and the data policy implications they raise, and the mechanics required to ‘donate’ data in a privacy-preserving way (opt-in/opt-out, pseudonymization, anonymization). The main governance themes we expect to address include open data, data ownership and control, privacy and data protection, intellectual property, public sector data, transparency, and accountability. Agenda [30 minutes] Welcome and introduction from the moderator, and introductory remarks from speakers (6 min per speaker) - Facebook Representative: ‘Data for Good’ Program - DataKind Representative: Presentation of on-going projects and changes - Polish government Representative: Data-driven response to COVID - CDT representative: Balancing the interests, challenges and opportunities that data altruism raise - EDPS representative: EU’s response to COVID-apps [30 minutes] Speakers’ exchange on open governance principles for data altruism, focusing on: (1) Input / data: whose data, aggregate vs granular, anonymized vs identifiable, further processing of existing data vs new data (2) Output / algorithms: transparency vs data security/integrity, privacy preserving measures, accountability of the data holder [30 minutes] Q&A open to on-site and online audience (through online moderator)
